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Routledge Handbook of Genomics, Health and Society

Uploaded by RRI Tools on 19 April 2018

Routledge Handbook of Genomics, Health and Society. 2nd Edition. Edited by Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner, Janelle Lamoreaux. 2018 – Routledge


The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research.

Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary ‘bioeconomies’; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs – and is shaped by – developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research.

Presenting cutting edge research from leading social science scholars, the Handbook provides a unique and important contribution to the field. It brings a rich and varied cross disciplinary social science perspective that engages with both the history and contemporary context of genomics and ‘post-genomics’, and considers the now global and transnational terrain in which these developments are unfolding.


Table of Contents

1 Introduction: Genomics, Health and Society, Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner and Janelle Lamoreaux

Section One: Genomic/DNA-based Technologies in the Clinic and Beyond

2 Introduction, Sabina Leonelli

3 Biomedicalisation in the Postgenomic Age, Catherine Bliss

4 Genomics and Big Data in Biomedicine, Sabina Leonelli and Niccolo Tempini

5 Mainstreaming Genomics and Personal Genetic Testing, Susan Kelly, Sally Wyatt and Anna Harris

6 Bringing Genetics into the Clinic: The Evolution of Genetic Testing and Counselling, Ilana Lowy

7 From Quality Control to Informed Choice: Understanding "Good Births" and Prenatal Genetic Testing in Contemporary Urban China, Jianfeng Zhu and Dong Dong

Section Two: Genomic Technologies in the Bioeconomy

8 Introduction, Claire Marris

9 Limits to Biocapital, Margaret Chiappetta and Kean Birch

10 Gendered Bioeconomies, Janelle Lamoreaux

11 Genomic Hope: Promise in the Bioeconomy, Paul Martin

12 Neoliberalism on Drugs: Genomics and the Political Economy of Medicine, Edward Nik-Khah

13 The Value of the Imagined Biological in Policy and Society: Somaticizing and Economising British Subject(ivitie)s, Martyn Pickersgill

14 Responsible Research and Innovation (RRI), Ulrike Felt

Section Three: Current Challenges in the Governance of Medical Genomics

15 Introduction, Stephen Hilgartner

16 The Human Genome Project and the Legacy of its Ethics Programs, Stephen Hilgartner

17 Patenting, Shobita Parthasarathy

18 Genomic Platforms and Clinical Research, Alberto Cambrosio, Etienne Vignola-Gagné, Nicole Nelson, Peter Keating, Pascale Bourret

19 Diagnostics, Stuart Hogarth

20 Collection and Protection of Personal Health Data, Edward Dove

21 In CRISPR’s World: Genome Editing and the Politics of Global Science, Ben Hurlbut

Section Four: Diversity and Justice

22 Introduction, Sahra Gibbon and Barbara Prainsack

23 Disability and the Challenge of Genomics, Jackie Lee Scully

24 Eugenics and Enhancement in Contemporary Genomics, Silvia Camporesi and Giulia Cavaliere

25 Genomics and Insurance, Ine van Hoyweghen

26 Power Asymmetries, Participation, and the Idea of Personalised Medicine, Barbara Prainsack

27 Excavating Difference: Race in Genomic Medicine, Sandra Lee

28 Genomics in Emerging and Developing Economies, Duana Fullwiley and Sahra Gibbon

Section Five: Crossing Boundaries

29 Introduction, Janelle Lamoreaux

30 Epigenetics, Margaret Lock

31 Environmental Epigenetics and Suicide Risk at a Molecular Scale, Stephanie Lloyd and Eugene Raikhel

32 Stem Cells, Global Cells, Local Cultures, Jennifer Liu

33 Co-producing Animal Models and Genetic Science, Carrie Friese

34 Making Microbiomes, Amber Benezra

35 Behavior Genetics: Boundary Crossings and Epistemic Cultures, Nicole Nelson and Aaron Panofsky

36 Synthetic Biology, Jane Calvert, Dominic Berry and Deborah Scott


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